Cystic Fibrosis Data and Statistics

  • Patient Registry - Cystic Fibrosis Foundation

    The patient registry report tracks the health of more than 23,000 cystic fibrosis (CF) patients who receive care at a Cystic Fibrosis Foundation-accredited care center. The information collected includes state of residence, height, weight, gender, genotype, pulmonary function test results, pancreatic enzyme use, length of hospitalizations, home IVs, and complications related to CF.

  • Care Center Data - Cystic Fibrosis Foundation

    Visitors can register to view specific care center data.

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